Barbara is a very positive child. She is smiling, communicative, easygoing and charming. Other children like her, they often kiss her and give her their toys. Barbara also has the best friend - a kitten DeDe (she always calls him "dede", so we decided it woud be his name). They are always together, even in the bathroom.
Harlequin ichthyosis has changed all my life, my values and outlooks. Sometimes I feel uncomfortable when people stare at my daughter or even ask me questions, but I let it be. All in all I know that appereance is not such an important thing. I am happy to have my girl in my life, she made my life full of love, and smiles. And now my life is more interesting and useful, and I am not what I used to be before. Life goes on and I love it."